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Children’s Heart Network
  • About
    • About the CHN
      • Board + Staff
      • Partners + Supporters
    • Mission
      • What We Do
  • Support
    • Programs
      • Events
      • Heart Boxes for Heart Patients
      • Summer Camps + Experiences
      • Hearts of Gold – Youth
      • Conferences
    • Resources
      • Stories of Hope
        • Newsletter
      • Memorials
      • Guides + Factsheets
        • CHD Factsheet
        • School Factsheet
        • Parent Education
      • Resource Parents Network
      • Coffee Groups
      • Helpful Links
        • Special Opportunities for Heart Kids
        • General Resources for Families
  • Heart + Soul Guide
  • News/Events
    • Upcoming Events
    • Growing Up with Heart Disease Conference
    • The Annual Children’s Heart Network Gala
    • Newsletter
  • Contact
    • Get Involved
      • Donate
      • Join us!
      • Mila’s Fund
      • Organize a Fundraiser
      • Volunteer Opportunities
  • Donate

Author: Dee de los Santos

How to Keep Cool During the Heat: Tips for Children with Congenital Heart Defects and Their Families

by Dee de los SantosUncategorizedPosted on July 14, 2025July 14, 2025No Comments

Summer sunshine can be wonderful, but for children living with congenital heart defects (CHD), high temperatures can also bring extra challenges. Heat can put additional strain on the heart and …

Read more “How to Keep Cool During the Heat: Tips for Children with Congenital Heart Defects and Their Families”

Summer Reading List for Heart Heroes

by Dee de los SantosUncategorizedPosted on July 14, 2025July 14, 2025No Comments

Looking for inspiring summer reads for your heart warrior or their siblings? We’ve put together a special summer reading list filled with books that celebrate bravery, kindness, resilience, hospital life, …

Read more “Summer Reading List for Heart Heroes”

Strong Hearts, Growing Minds

by Dee de los SantosUncategorizedPosted on November 8, 2024November 8, 2024No Comments

A YouTube channel that aims to provide parents with educational videos focused on the connection between the heart, the brain and neurodevelopment with the goal of supporting parents to advocate …

Read more “Strong Hearts, Growing Minds”

Growing Up With Heart Disease – Partnering Together

by Dee de los SantosEventsPosted on September 21, 2024September 21, 2024No Comments

Growing Up with Heart Disease is a collaborative 1-day Conference by and for families and healthcare professionals. Families and healthcare professionals sharing and learning from each other’s experiences of caring …

Read more “Growing Up With Heart Disease – Partnering Together”

Fontan Education Day 2024

by Dee de los SantosResourcesPosted on June 12, 2024June 12, 2024No Comments

If you missed the Fontan Education Day and would like to access the materials you can access them online now. Link to website HERE

Coming Up: Cultus Lake Waterpark

by Dee de los SantosEventsPosted on May 28, 2024No Comments

Mark your calendars because on August 24th, we’re going to Cultus Lake waterpark for the day!

Check out our latest newsletter!

by Dee de los SantosEventsPosted on May 28, 2024May 28, 2024No Comments

Find our latest newsletter here:   Newsletters

Gutenberg Sample Post

by Dee de los SantosLandscapesPosted on November 9, 2019One Comment

This is some dummy copy. You’re not really supposed to read this dummy copy, it is just a placeholder for people who need some type to visualize what the actual …

Read more “Gutenberg Sample Post”

Testing the Elements

by Dee de los SantosGeneralPosted on November 3, 2019June 10, 20244 Comments

This is some dummy copy. You’re not really supposed to read this dummy copy, it is just a place holder for people who need some type to visualize what the …

Read more “Testing the Elements”

Post with YouTube Video

by Dee de los SantosVideosPosted on November 1, 2019One Comment

This is some dummy copy. You’re not really supposed to read this dummy copy, it is just a place holder for people who need some type to visualize what the …

Read more “Post with YouTube Video”

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