For families with children/young adults with aortic enlargement.
The Genetic Aortic Disorders Association Canada and the Children’s Heart Centre invite children and young adults with Marfan syndrome, Loeys-Dietz syndrome, and other genetic syndromes that cause aortic enlargement to a free Pediatric Aortopathy Connection Day.
When: September 23, 8:30 am to 5 pm
Where: Child & Family Research Institute, 938 W 28th Avenue, Vancouver (across the inner road from BC Children’s Hospital entrance #17)
There is parking at BC Children’s Hospital as well as some street parking (check signage).
What: Networking with other aortopathy families, coffee and lunch break, updates from the BC Children’s Hospital cardiology, orthopedics, research, and psychology departments.
Admission is free, but a registration form must be completed for each family.