An Invisible Condition and Mental Well-Being
I have learned many important life lessons from a young age, growing up with postural orthostatic tachycardia syndrome, or POTS, which is a form of dysautonomia.
I have learned many important life lessons from a young age, growing up with postural orthostatic tachycardia syndrome, or POTS, which is a form of dysautonomia.
One of the hardest challenges we have had to face is discovering our second child was going to be born with a congenital heart defect.
I was diagnosed with severe aortic valve stenosis when I was less than 24 hours old. When I was two days old, I had my first surgery, a balloon dilation procedure, which opened up my aortic valve.
Lisa Lalsingh and Stephanie Isaac are both important, valued volunteers with CHN, and they have made a significant impact on our organization.
Sophia Madeline was born almost a month ahead of her due date on January 10, 2012. But her heart story goes back to when she was diagnosed with a heart condition during the 20-week gestation ultrasound.
Most days I don’t think about the fact we spent much of the first six months of Declan’s life in the hospital. These days he’s an active, curious, creative kid who drives me crazy but makes me laugh to my core.
At five days old, Ariel underwent an extensive heart surgery performed by Dr. Sanjiv Gandhi, who is, by far, one of the most amazing human beings. He is someone for whom we are forever grateful.
My name is Jordan, and I’m writing because the Children’s Heart Network asked me to describe my experience with the Hearts of Gold program.
Hi! My name is Kailen. I am 13. I was born with transposition of the great arteries. I had my first surgery at two days old, and my second full open-heart surgery at two weeks old. Recently, I got a pacemaker.
It’s interesting what the mind remembers after a traumatic event. Mine holds on to a hallway with walls covered in ceramic tiles.